FISCAL NOTE
Date Requested: February 08, 2017
Time Requested: 05:59 PM |
| Agency: |
Health and Human Resources, WV Department of |
|---|
| CBD Number: |
Version: |
Bill Number: |
Resolution Number: |
| 1266 |
Introduced |
HB2187 |
|
|---|
| CBD Subject: |
Boards and Commissions |
|---|
|
FUND(S):
0407-CENTRAL OFFICE GENERAL ADMIINISTRATIVE FUND
Sources of Revenue:
General Fund,Special Fund
Legislation creates:
A New Fund
Fiscal Note Summary
Effect this measure will have on costs and revenues of state government.
The purpose of this bill is to create an advisory council to educate the public and the medical community in the recognition, diagnosis, treatment and research of rare diseases.
The proposed legislation would create the West Virginia Advisory Council on Rare Diseases, create its composition, set terms for members, define the duties and powers of the Council, and assign administrative support responsibility of the Council to the Department. The establishment and ongoing responsibilities of the Council would require members to meet regularly and work in conjunction with the Department and other West Virginia governmental agencies, including the state's medical schools, in the development of information and programs of benefit to the public and the health care community relating to the diagnosis, treatment, and awareness of rare diseases. The duties and responsibilities as described in this proposed legislation would require extensive research activities, travel, and development of a public and health care community media campaign. The administrative support responsibility assigned to the Department would require staff to manage and coordinate Council activities. To manage travel costs, meetings would be scheduled and held at an available Department facility located in the middle part of the State.
Fiscal Note Detail
| Effect of Proposal |
Fiscal Year |
2017
Increase/Decrease
(use"-") |
2018
Increase/Decrease
(use"-") |
Fiscal Year
(Upon Full
Implementation) |
| 1. Estmated Total Cost |
0 |
241,848 |
239,851 |
| Personal Services |
0 |
99,270 |
99,270 |
| Current Expenses |
0 |
142,578 |
140,581 |
| Repairs and Alterations |
0 |
0 |
0 |
| Assets |
0 |
0 |
0 |
| Other |
0 |
0 |
0 |
| 2. Estimated Total Revenues |
0 |
0 |
0 |
Explanation of above estimates (including long-range effect):
The estimated $99,270 in Personal Services for FY2018 and ongoing is for 1.00 FTE HHR Program Manager I (HHRPM I) to manage and coordinate Advisory Council activities for the Department ($52,926); .and a .50 FTE Secretary I to provide administrative support ($15,324) for a total of $68,250 in salaries. Fringes for the 1.50 FTEs include Public Employees Health Insurance Administrative Fees of $100 ($50 per employee x 1.50 FTE); Personnel Administrative Fee of $270 ($180 per FTE x 1.50 FTEs); Health Insurance of $13,428 ($8,952 per FTE x 1.50 FTEs); Social Security of $5,222 ($68,250 x .0765); Retirement of $8,190 ($68,250 x .12); Workers Compensation of $282 ($68,250 x .00412); and WV OPEB Contribution of $3,528 ($2,352 x 1.50 FTEs) for a total of $31,020 in fringes.
The estimated $142,578 in Current Expenses for FY2018 include a public and health care community awareness campaign of $100,000 to include development of print, radio, and television media; office space rental of $17,280 ($15 per SF x 64 SF per FTE x 1.50 FTEs x 12 months): travel related costs for HHRPM and Advisory members attending one-day monthly Council meetings of $10,169 (144 miles x .535 per mile x 11 attendees x 12 meetings); travel costs for HHRPM and Advisory members attending two-day quarterly meetings with the state's medical schools of $3,390 (144 miles x .535 per mile x 11 attendees x 4 meetings); lodging for HHRPM and Advisory members attending quarterly meetings with state's medical schools of $4,356 (4 nights x $99 per night x 11 attendees); meals for HHRPM and Advisory members attending quarterly meetings with state's medical schools of $3,366 ($51 per diem x .75 x 2 days x 4 meetings x 11 attendees); landline telephones for HHRPM and Secretary (1.50 FTEs) of $900 ($50 per month x 12 months x 1.50 FTEs); cell phone for HHRPM of $720 ($60 per month x 12 months x 1 FTE); computer equipment for HHRPM of $1,229 (laptop computer, docking station and monitor x $1,229 x 1 FTE); computer equipment for Secretary of $768 (desktop computer and monitor x $768 x 1 FTE); and office supplies of $400 ($200 per employee). FY2019 and ongoing current expenses will remain the same with the exception of the computer equipment.
Memorandum
West Virginia Code 16-22 requires the Bureau for Public Health to provide screening for multiple rare diseases at birth (newborn screening). A statewide advisory council is currently in place. While focused on infants, the existing Council has genetics and other medical specialists on the Advisory. In some aspects, this proposed legislation would duplicate current efforts to identify such rare diseases that are identifiable at birth.
The duties described in Section 3 of this proposed legislation are extensive and include a wide-range of endeavors to address rare diseases from coordinating state-wide efforts for the study of rare diseases to research, identification of priorities, and development of policies. Additionally, the bill requires the Department Secretary to provide reasonably necessary administrative support to the Advisory Council. Given the breadth of the Council's duties it is likely that Council will require a staff to accomplish its mission. It is also likely that it will be necessary for any staff assigned by the Secretary to assist the Council to devote significant time and resources to accomplishing the Council's work.
The new fund allows for gift, grant, appropriations by Legislature. Appropriations by Legislature would be required to allow for funding to start the program, and to cover expenses if gifts or grants cannot be obtained.
Person submitting Fiscal Note: Bill J. Crouch, Cabinet Secretary
Email Address: dhhrbudgetoffice@wv.gov